Posted by: E (The Third Glance) | June 14, 2014

A brief update – why you haven’t heard from me in a while

Hello, my dear readers, it has been a while, hasn’t it? I promise, this post has very little insightful about autism or my brain or anything. I just have been completely absent from the internet for a while, and am surfacing briefly to say hello, let you know that I’m still kicking, and say thanks for sticking with me. Hopefully more substantial things will be coming later. I’ll probably be writing a bit about my experiences of the past months, and what it’s like to be (not openly) autistic while trying to navigate the US medical system. I just haven’t found the words for that yet, especially since its still very much ongoing.

For those of you who want more details, let me just say that I’ve been sick. Very sick. In and out of the emergency room and hospital. No one can figure out whats wrong with me. No one seems to want to talk to each other. I’ve been doing my absolute best to stay afloat and stay in grad school – that’s the source of my happiness, income, and health insurance, and while some kindhearted people have suggested I take a leave of absence, it is more likely to hurt than help. I love what I do, and it’s the one thing that gives me some purpose. My advisor has been extremely supportive and managing his expectations for what I’m able to do, and stopping grad school would leave me completely focused on “health”, which, at the moment, is rather depressing. It’s kind of my outlet in a way.

I’ve been trying to manage a very interesting team of doctors, who won’t speak to each other at all except through abbreviated “visit notes” that go on my chart. No one has any answers, and they continually blame the problems on “well, it’s probably Doctor A’s specialty” to “well, I don’t know, it must be this doctor B’s territory”. It is ridiculous. One of my meds backfired and it took us nearly 2 months to figure out what was causing the problem. I’m *finally* starting to come out the other end, and maybe some of this will let up a bit. But as you might imagine, while I’ve been juggling all of this, writing, or really, doing *anything* beyond the research and work I’m currently paid to do, was out of the question. This is my first functional day in over 2 weeks. I should be working, but here I am instead. That’s one of the reasons this is short and purely information, not analysis.

On a much happier note, about 2 months ago, I finally got out of my hell of a living situation, and am now living with an extremely wonderful person who I absolutely adore, who looks out for me, and genuinely cares about me as a person. Just that, alone, has done wonders for my mental, if not physical, health. And it’s really helped out when I have physical health flares, because I know there’s someone around if I need help. You might hear some from my new roommate on the blog at some point, too.

And with that, I’m off to do some science-related things. Best to everyone – I’ve still been reading, and hopefully I’ll be back to contributing soon too.

E

Posted by: E (The Third Glance) | April 26, 2014

The Social Barometer

I learned yesterday that one of my colleagues (fellow grad students), judges whether people are worth his time, based on whether or not they like me. I am the only TA for one of the undergrad required courses, so I have worked with nearly every undergraduate in the major at my school, and a number of the grad students, so a lot of people know me, at least in passing. This person noticed that people who didn’t like me, he didn’t get along with, and people who liked me, he also liked. So now he uses me as a barometer of whether people are worth his while to get to know. “Do you know E?” “Oh yeah, I don’t like her.” “Thanks for your time, I’m leaving now.”

I’m not sure how I feel about this. Kind of amused, I think, because, well, I do think that whether someone likes me or not on “first glance” is kind of a pretty good judge of character. I think I’m a pretty benign sort of person. I’m pleasant. I go out of my way to be helpful and nice to people, but I’m also no-nonsense, especially when I’m teaching. And of course, I’m the first to admit, I’m a little bit peculiar. I move and dress and talk a little bit differently than most people. While I’m not openly autistic, it is pretty obvious that there is something a bit different about me. This means that most people who meet me once don’t quite know what to make of me. It’s those who take the time to get to know me before judging me that recognize my personhood and my kindness. Those who judge immediately and never think past it are the ones who dislike me.

So to me, it is very interesting that my colleague has determined this pattern. I suppose it makes sense, and I think, in a strange sense, I’m flattered, because this colleague is a really thoughtful, mature person, and I respect his opinion quite a bit. And thinking about it, well, obviously I’m a biased judge, because I don’t like it when people dislike me without getting to know me first, so I tend to judge those people a little bit more harshly, it is kind of nice to know that other people recognize that I am a good person, and that those who don’t like me probably aren’t worth their while either. It is somewhat validating, to be quite honest.

Has anyone else experienced this sort of thing?

———–

Also a note to my regular readers – this month started off strong, but unfortunately, between health issues and life issues (I’m moved!!!!!!!!! into a safe house, with a roommate who is utterly amazing, and let me tell you it is awesome), I haven’t been up to continuing the autism acceptance in action posts. Hopefully I’ll pull something together for the flash blog on April 30th. Hope everyone is surviving April better than I have. (It is getting so much better already, though.) I’ll probably write something about my awesome new roommate at some point, just not entirely sure when.

Posted by: E (The Third Glance) | April 3, 2014

April Autism Acceptance series #3: “Age Appropriate” play and toys

This is the third post in the April Autism Acceptance Series.

One of the things I see most often when I poke around in autism parent forums, is the concern that their child isn’t playing with “age appropriate” toys or doesn’t have “age appropriate” interests. This, to my eyes, is one of the most ridiculous questions to be asking, and in a way, really shows how far we have to go for autism acceptance. The whole idea of “age appropriate” kind of bothers me, because numerical age is such a misnomer anyway, since everyone develops on a different trajectory. But I digress. The thing is, what is the point of toys? When you’re a little kid, there are two major purposes that a toy serves. The first is play. The second is learning and development of some sort. But really, what is the point of a toy? It is to make a person happy and enjoy themselves. Sometimes toys are for comfort. Sometimes they are for a challenge.

In a world where every movement, every interaction, every sound, light, and texture is a challenge, I seek comfort where I can. I didn’t have hours of therapy when I was younger, but I can imagine that for children who do, the hours of therapy only increase the challenges they face on a daily, even hourly basis. Is it any wonder that when given the opportunity to do something of their own choice, they choose something that they find comforting? There’s only so much that my brain can stretch for a day. For some people, that comfort comes in watching train videos on youtube. For others, it involves hours of scripting Dora the Explorer. For others, it is lining up toys instead of doing the “intended” thing with them. Play and toys are more than a learning and developmental tool. There’s more than one “right” way to do something with toys. I would hesitate to say there are any “right” ways to play with something. Toys, interests, and recreation are a chance for a person to allow their brain to reorder, stretch, and grow, but also just to relax and have fun. And the “age” that they are appropriate for is any age that finds them helpful, interesting, or comforting.

I will tell you, that as a 24-year-old woman, I still have all of my stuffed animals, and I snuggle with them on my bed every night. I take one with me many days of the week, especially when I’m not feeling good. I love watching Disney movies. I read and greatly enjoy books written for young teenagers (though by no means are these the only books I read). I don’t find things my age-peers do for fun (going to bars, watching drama-based TV/movies) particularly interesting or compelling. And in my eyes, that is perfectly fine. It is what makes me, me. I choose to challenge myself intellectually, all day at work. But I also choose comfort. When I come home, I choose to read things I have read tens or hundreds of times before. I choose to cuddle my stuffed animals. I choose to watch movies and TV with simple but elegant plotlines that I have watched numerous times before. I am 24, and I am autistic, and my choices reflect what I need to do to interact with the world.

So Parents, next time that you worry that your child isn’t playing with “age appropriate” toys or doesn’t have “age appropriate” interests, just remember this. The age on the package means nothing. Toys and interests have many purposes, and your child is enjoying themselves doing what they love to do. Acceptance isn’t settling for the idea that your child likes strange things that are different from their peers interests. Acceptance is recognizing that there is intrinsic value in someone’s interests, no matter how different from the perceived “normal”, and reveling in that knowledge and understanding.

Posted by: E (The Third Glance) | April 2, 2014

April Autism Acceptance Series #2: My Own Autism Acceptance

When I was little, I liked to spin in circles. I would spin in circles until I was too dizzy to stand, and then I would start spinning the other way instead. I could do this for hours, and I loved every minute of it. When I was a little older, I learned that it wasn’t ok to do that anymore. Big girls didn’t spin. We didn’t flap our hands. We didn’t obsessively read everything we could find. We didn’t squeal with joy when we did something we loved. We didn’t run away and hide under the chair when there were people around. We ate what was on the plate in front of us, even if it was so awful that we couldn’t chew and swallow it. We wore clothes that hurt us, and we had to look at people in the eyes, even though it made us completely unable to concentrate on the words they were saying or what we wanted to say. I learned that if I said anything or put up any fight to anything that hurt me, I would be punished. I learned that if I didn’t look at someone properly, I would be punished. I learned that if I talked wrong, said the wrong words, or at the wrong time, or said too much, or said too little, that people would get mad. I learned that no matter what I did, I was going to have done it wrong. When I a little older, I didn’t know that autism existed, but I did know that I wasn’t like the other children. And I knew that whatever made me different, made me wrong. And it was my sworn duty as a member of the human race, to hide any trace of it, so that I didn’t appear wrong. If I messed up, I knew, there were dire consequences.

It wasn’t until college that I found out what made me different had a name. By that time, I knew autism existed. I thought I knew what it was, in a vague sense. I hadn’t ever seen Rainman, but I had heard a bit abut autism, and I knew it was bad. There was a girl who was mainstreamed just for homeroom in my middle school, who everyone said had autism. That was all I knew about it, and I knew it was bad. So when I was first asked if I was autistic, my immediate answer was “no way!” For you see, I had spent the past 19 years of my life working with every ounce of my being, to hide it, with only marginal success. In a way, when I really learned about autism, I started to realize that it made sense as it applied to me. After all, autism was wrong, and so was I, so that was ok.

It took me a long time to realize that being autistic, it wasn’t all about being “wrong” and having a name for it. I thought “ok, now that I have a name, I can fix all the wrongs” – not that I hadn’t tried to fix everything for my entire life already. I started reading perspectives written by autistic people, and seeing how they viewed themselves and the world. I realized that the framework to interface with the world that I was forced to work within growing up just didn’t fit with the way that my brain processed information. It’s like trying to interact with a computer by writing in a programming language that doesn’t have a compiler. You can write all the code you want, but without the proper compiler, it is never going to run, and all you get is gibberish and frustration. Reading other autistic people’s writing helped me to realize that my fabled “fix”, wasn’t what I thought it was. I wasn’t buggy code, it was much different from that. I began building a new framework for interfacing with the world. I learned that I wasn’t wrong, just different, and I needed to learn a new programming language that worked better with my built in compiler. I started to accept that my quirks, my sensory issues, my passions, and my fears, they were just a part of me that needed to be respected and worked with.

In the 5 years that have passed since I learned that my quirks had a name, I have learned to accept myself. And I think, in all honesty, that the reason I am surrounded by such wonderful people, who accept me the way I am, is because I accept myself. If I lead, others will follow. Sure, I spend most of my day in my office not talking to people. I wear the same type of clothes every day. I eat very specific food. I jump at the slightest noises. I flap my hands and tap my feet and wring my fingers when I’m stressed. I curl up into a ball and rock when I need to. I have a great job, doing research that I love. I have wonderful friends who accept me with open arms. And I still love to spin in endless circles. That is me, autistic and happy, and on this journey of life just like everyone else. And that is what autism acceptance is.

Posted by: E (The Third Glance) | April 1, 2014

April Autism Acceptance Series, April 1: The Watch

This is the first post in my April Autism Acceptance series. In this series, I am going to highlight various people and events from my daily life that epitomize what “autism acceptance” looks like for me.

——

I have had the same watch since I was 13. Before then, I had another watch. I don’t understand time very well, and I can’t keep track of it on my own, so a watch is essential to my functionality. I can’t really do anything in the “real world” if I can’t keep track of time. Sometimes this is fine, but when I have 20 things on my to-do list for the day, it just isn’t. So I use my amazing digital watch, with its timer, and stopwatch, at least 10-15 times per day, often more. Unfortunately, this watch is now 11.5 years old, and its band is failing. I had to replace the band once before, and managed to do so, but unfortunately, the company no longer makes the part. And they can’t recommend a suitable replacement band.

My watch is a constant part of my wardrobe, and for the past 2 weeks, I haven’t been wearing it, most of the time because I can’t destroy the band anymore. I am constantly on edge now, because every time I move my arm, I am reminded of its absence. This usually leads to a flap or a few rocks, or some serious finger stimming/wringing. As you can imagine, it is rather distressing to be missing my watch. I’ve been carrying it around in my pocket just to reassure myself that it is still there, and so that I can use it, but it just isn’t the same. Not having my watch on is more than just a small change. It changes the whole sensory environment on my arm. And it changes how I have to go about structuring and thinking about my day. It really is a major barrier to my functioning.

And that’s where the autism acceptance thing comes in. My friends have noticed that I’m more on edge. One of them even noticed my watch was not on my wrist, and she put two and two together. They have expressed concerns, offered to loan me a watch, and help me get it fixed. Not a one of them has laughed at me and my panicked sounding half-sentences about how I need my watch, and yes, it has to be this one! Every single friend I’ve talked to about this has offered to help me in some way, to make it better. Unfortunately, it isn’t resolved yet, but knowing that I have the acceptance and support of my friends, both in my attempt to fix my watch, but also to help me through the misery and confusion that the band breaking has caused, is really wonderful.

Tomorrow, April 1st, is the beginning of Autism Awareness Month. How ironic, that it starts on April Fools Day. Or perhaps how fitting, since of course, so much of “autism awareness month” is really just one big practical joke. Or maybe that’s what I wish was the case. Anyway, I digress. Of course, I assume everyone who reads my blog on a regular basis, is very much so aware of the fact that April is a month of heightened discussion of autism. Most of us are probably up to our eyeballs in “awareness”, and actually dread the month. Me? I try not to let things get to the point of utter dread. Especially things that are out of my control. I spend so much of my life dreading things that are out of my control already, that I just have learned to pick my battles.

Instead of condemning April, or telling everyone which charity they should be donating to or scorning, I’m going to try to do something a little bit different. My spoon level has been far below even “low” for a while (hence the very few posts), so I can’t make any promises of daily posts or anything, but I am going to try to post much more frequently this April. I’m hoping to write a series of short posts highlighting autism acceptance moments from my daily life, to show what autism awareness, and indeed, acceptance looks like in practice. Because after all, we don’t just want people to be aware that this mysterious “autism” thing exists… we want people to know that we are people, with likes, dislikes, personalities, and interests. We are friends, siblings, parents, children. And even though we live in a world where things are often too loud, too crowded, too busy, and too much, we deserve the respect that every person on the planet deserves. And we want to show people who might not really know what autism *really* looks like, that they, too, can play a part in helping to make our world, and in turn, the whole world, a better place.

So check back soon, my lovely readers, I hope you enjoy my April Autism Acceptance Series.

Posted by: E (The Third Glance) | February 28, 2014

A Social Skills Dilemma… going to new places

This post isn’t particularly insightful, but since my goal in writing this blog is to show how my brain works on a daily basis and in response to things, I thought I would share something that I’ve been stuck on for a while.

One of my biggest challenges is going somewhere new. This could be a new restaurant, a new theater, a new parking lot, anything really. It doesn’t matter that I’ve been to hundreds of restaurants before. If it is a chain, it doesn’t matter if I’ve been to others in the chain. I will still be supremely nervous about going to and entering a new place. This stems from my poor social skills, and the fact that I have to learn the “acceptable” patterns and interactions. Lets continue with the restaurant theme. First off, some restaurants have multiple doors. Which one do I use? Once I’ve figured out how to get into the building, is it a “seat yourself” or is there a person waiting to seat you? Does this change depending on what time of day it is? Sometimes there are signs or a person standing there to help answer that question, but other times it is ambiguous. Once I’ve been seated, and have a menu – is there food I can eat? If not, how can I modify an existing menu item? And past that, how can I communicate this to the people who will bring me food? And finally, at the end of the meal, do I pay the waiter/waitress, or do I have to take my check up to the counter or register? I have worked very hard to be able to generalize my model of “eat a meal at a restaurant”, but it isn’t easy, and I mess up quite often.

As you can see, there are numerous challenges associated with going to a new place. I’ve been to a restaurant/bar several times now (for various friends goodbye parties), and I’ve never figured out how to order a drink at the bar besides water, which is free. I can’t figure out how it works. I don’t drink, but I really like virgin strawberry daiquiris – it’s basically a strawberry smoothie after all, and I’d love to figure out how to order one. But I digress.

I solve this problem in several ways. When I’m nervous about going to a new place, I try to go with a friend. This way, I can follow their lead. If I’m with someone else, and we mess up the social stuff, that friend usually is able to smooth things over, where I would just melt down on my own. But usually the friend is able to adapt to the new environment very quickly, and I’m a good mimic – I can just follow their lead. I try to challenge myself by occasionally visiting new places on my own, but I find the stress of it is too much most of the time, and I’d rather just stay home. The other way I solve this, is if I know I will be going alone on the day of (for example, many doctors appointments), I do a “practice run” – I’ll drive to the place, find the right doors, etc. a few days before, then I’ll practice the steps in my head until the official run. This isn’t always practical, but it is a way to work around this issue.

This brings me to my newest dilemma… I’ve been wanting to get back into swimming. I did it as a kid during the summers on swim team, and while I was tiny and skinny and would literally turn blue during our dawn practices, I really enjoyed what I was able to do. I’ve been wanting to do some more serious exercise that I can control on my own, and I thought swimming would be a great way to do that. This should be easy. My university has an indoor heated pool that I can use. But the thing is, I don’t know any of the steps to “swimming”, beyond getting in a (hopefully empty) lane and swimming back and forth. And sharing when there are too many people. So things like how to use the locker room. How to get into the locker room is step 1. I think this is easy, I just show my ID. I’ve watched people do this, but some of them don’t, and some do, but only sometimes. Once I’m in the locker room, I assume I can use a locker if I bring my own lock. I’ve read my university’s policy, and it seems that if I use my own lock, I can keep stuff there while I’m swimming, but not overnight. When I walk to the pool, I keep myself wrapped in my towel, right? Or do I put clothes on over my suit?  But then, when I’m done swimming, can I shower? I assume yes. I hope so. Do I wear shower shoes? Again, I assume yes. What do I do with wet bathing suit and towel? I assume I put them in a plastic bag then as soon as I get somewhere that I can, I hang them up to dry so they’re not sitting in a gross bag all day.

I’ve been thinking about swimming early in the mornings for months now. I just need to actually do it. I know that if I had a friend go with me once, I would be able to do it on my own later. But right now there are so many obstacles in my way that I’m too nervous to actually do it. Hopefully I’ll be able to get myself into the locker room at some point and from there, I think I’ll be able to figure things out.

A lot of people assume that autistic people and others with social phobias just don’t want to do new things or interact with other people. While that is true some of the time, quite a lot of the time, it is just the opposite – I want to do something new, I just can’t figure out the steps to do it on my own. It is too daunting to try a brand new social situation completely cold, so I just don’t. I’ve been challenging myself on this whole swimming thing. Maybe now that I’ve written this post, I’ll just do it. It’ll have to wait a few weeks though – I want to do it in the early mornings (the pool is open to lap swimmers 7-8am) since I figure it’ll be less crowded, but right now, my mornings are dictated by labwork, since I’m sharing equipment, and the only time I can use it is before 9:30am. Makes for very early mornings, and I’m not giving up my precious scope time for a major social nightmare.

How do other people handle these sorts of situations?

Posted by: E (The Third Glance) | February 3, 2014

Introducing… StimmyKnitting!

A break from my regularly scheduled posts to tell you about a new adventure I’m embarking upon…

Most of my regular readers will remember a post I wrote a couple months ago discussing one of my hobbies. I’m a knitter. I knit because I love the repetitive feeling of each stitch. It’s calming, comforting, and it makes really gorgeous products. For me, knitting really is a stim. See, world, autistic stimming is awesome :)

A number of people asked me after that post if I ever sell my knitted products. I generally haven’t, they just sort of pile up in my closet until I figure out what to do with them. So I thought about it a bit, and I decided that it might be fun to sell some stuff – after all, if I sell some knitted stuff, I can afford to buy more yarn and make more things! And that is always fun.

So on that note, I have created an Etsy store. It is (fittingly) called “StimmyKnitting”. You can access it through this link or from the side bar.

I’ve got a few things up right now, mostly fingerless gloves and a few hats. I also tried my hand at an infinity scarf that a friend asked me to make for another friend of hers, and it turned out so well, I made another! It’s super gorgeous and soft yarn. If I wore scarves, I would totally want one for me.

At any rate, I just wanted to let you all know that this exists… If you see something you like, but it’s not in the right color or size, let me know – I’m happy to take commissions, and at least sometimes, I like trying to develop new patterns, too. As you can see, I’m rather fond of blues and greens.

Some things I currently have up in my etsy store include: (images link to the store)

Hats:

Turquoise Hats

Blue and white pom pom hat

Fingerless Gloves:

Green fingerless gloves

Blue fingerless gloves

A gorgeous turquoise Infinity Scarf that a friend commissioned from me, but that I got super excited about and made another one… it matches the turquoise hats above :)

Turquoise Infinity Scarf

I also have a facebook page you can like if you want to see new items as they go up in the shop.

I don’t plan on doing any more major advertising on the blog, but I did want to let you all know that I am trying this. We’ll see how it goes!

p.s. I ship at cost, estimated by USPS cheap parcel post – unfortunately, for those of you who live outside the US, it is expensive to ship things overseas. I’m sorry :(

I always thought this was kind of a funny story… I grew up in a small town where everything and then some was all about kids soccer. When I was in kindergarten, my mom decided that I, too, would benefit from playing soccer. Maybe it had something to do with her idea that if I just spent more time with the other kids, they’d actually talk to me. Or maybe it was that she thought I would talk to them. I don’t know. Either way, I showed up at my very first soccer class in the gym. I remember there being about 40 kids there, but I’m sure the number was more like 15-20. It was loud and overwhelming. The instructors gave each kid a ball. The balls were nearly as big as my legs. I was pretty tiny, despite being a little bit older than most of the other kids. Then they taught us some skills – how to dribble the ball between our feet. How to stop the ball. How to kick it with the INSIDE of your foot, not the toes. Then they taught us how to pass the ball to one another. After I’d adjusted to the cacophony, I actually had a really great time. I decided that I loved soccer. The next week came along, and we only spent a few minutes reviewing how to dribble, stop, and pass. Then they took everyone’s balls away and made us all chase after one. And I suddenly ceased to see the point. Thus ended my career with soccer.

I never understood the point of team sports – I was never any good at them in gym class or outside of it. I didn’t understand the rules, they moved too fast for me, and for crying out loud, my success was defined almost entirely on what other random kids who were assigned to the same team I was assigned to did during the game. That doesn’t mean that my athletic abilities were extremely poor. Yes, I have serious proprioception issues. Yes, I’m extremely clumsy. But that doesn’t mean I couldn’t learn and excel at a physical activity or sport, it just had to be the right one for me. In addition to numerous team sports introduced in the dreaded gym class, I tried dance (too many kids, too loud music, I’m not graceful, never will be), and ice skating (too cold, I turned blue even with tons of layers, plus the whole sharp blades on my feet was kind of a recipe for disaster), and gymnastics.

Gymnastics was the thing that fit. I actually got pretty good too – I even won states on my best event one year. I’m not saying gymnastics is the solution for every autistic kid who wants to do a sport. I’m saying it was what worked for me. I enjoyed every aspect of it. I was part of a smaller team (there were never more than 8 of us, and we grew up together), and the pressure to improve and get better was entirely on me. I was 100% accountable for all outcomes related to me. It didn’t matter what my teammates did or didn’t do. It was my job to do my best. And it was their job to do their best. We were constantly pushing each other and cheering each other on, because one person’s success was never another person’s failure, it was that person’s success. Gymnastics taught me more than just how to be on a supportive team. I learned how to work with my body in ways I never thought possible. While I’m extremely clumsy walking and doing daily tasks, if I’m doing a gymnastics routine, my concentration is 100% on the moves, and I’m actually very good. I’ve never seriously injured myself doing my routines. Sprained ankles walking off the mats? Definitely. Broken toes walking into the wires that hold up the bars? Yup, been there too. Whack my head on the low bar hard enough to leave a lump? Yep, done that too. But give me a routine to do, and I can learn it and perform it. It takes me a lot longer than many other people to learn the moves, but that’s ok too. I learned them, at my own pace. For me, gymnastics helped me to become more familiar with my body’s strengths and limitations. I was able to learn problem-solving and developed relationships with wonderful teammates. I learned how to participate in competitions and how to win and lose. And I learned some really cool skills that I can still do, at age 24 – I still use the “yeah, I can do a back flip” with a fair amount of regularity – besides, its fun!

Anyway, the point of this ramble is that every kid is different. But don’t discount their ability to participate in a sport or activity just because of their labels. I have found that the important thing isn’t necessarily physical aptitude. It is drive and desire. If you want to do something, you’ll find a way. It might take a long time. It might be exhausting. It might take a huge amount of effort. The path you take to get there might be different from most people. But you’ll find a way to make it work for you. For me, gymnastics was the thing that helped me get there.

And still to this day, I can’t for the life of me, figure out how to play soccer. (or basketball or volleyball or field hockey or football or…….) And that is 100% ok with me. :)

Posted by: E (The Third Glance) | December 21, 2013

Disney’s Frozen and Autism

Warning: This post contains spoilers for the Disney movie Frozen, which I watched this past week with some of my friends. If you don’t want spoilers, please don’t read below. TL/DR summary: Great movie, go see it! [also, the paragraph below, while containing no plot points, does have a short discussion of an event in the film, so if you want to be totally surprised stop here, if you want a little non-spoiler commentary, read the paragraph below, then stop... :)]

Honestly I wasn’t sure what to expect going into the film – I’d heard mixed things, a review by someone who hadn’t seen it, but who hated it because it destroyed the Ice Queen story, and some people who had seen it and loved it. But I love Idina Menzel, and I’m always game for a fun movie (though not usually in the theater). So my friends and I went to a morning showing (fewer people, less crazy, etc.), and I absolutely adored it. I am sooooo going to see it again. In addition to being a really fun film, there are a couple of really awesome things that Disney doesn’t often do – it puts the self-worth of the female protagonist(s) on their own terms, rather than those of the male supporting characters. And there is an *amazing* scene where they model consent incredibly well, and that absolutely made me giddy, because that is the model of a relationship we want young people to see. (The line went something like: “I could kiss you right now!… I really want to kiss you… may I kiss you?” and then he *waited* for her response!) But the thing that stuck with me was something I wasn’t expecting… there’s a couple of really interesting parallels to autism and how we treat autistic kids/people (and disabled kids/people in general), and I really related much more closely with Elsa (the sister/ice queen) than I did with Anna, the protagonist/official Disney Princess for the film. That’s what I’ll be discussing below. But all I have to say is that if you haven’t seen the film yet, I think it is really worthwhile. Obviously, it’s not perfect, but I was really pleasantly surprised. And it made me happy. Oh, and I’ve had “Let It Go” on repeat basically continuously since I saw the film… I think a good 1% of the 12 million views it has on Youtube are courtesy of your truly. I’ll get my hands on the actual soundtrack next month when my budget allows…

Do not read below this if you don’t want spoilers. Sorry, I’m not skilled enough to make a “click here to read below the fold” so I just have to trust that you, my lovely readers, are smart enough to stop here if you don’t want spoilers for the film.

——————————-

*******SPOILER ALERT*******
DO NOT READ BELOW HERE IF YOU DON’T WANT DISCUSSION OF THE STORY!

Despite the fact that obviously, Anna (the younger sister) is the main character of the film, and we’re supposed to relate strongly to her, I found myself much more attracted to her older sister, Elsa. From the very beginning, when Anna climbs on top of Elsa in bed begging to play, and I was reminded of how my little sister used to do similar things to me. But more than that, I saw a lot of parallels to how my family (and how lots of people) treated me and my autistic traits when I was growing up.

Elsa’s “power”, the ability to cast ice and snow wherever she is, especially when it comes in contact with her hands, is unique, and it makes her seem special to her sister. But as Elsa grows, her powers grow with her, and become harder to control. Anyone else see a parallel to autistic traits and development/growth of autistic kids?

When Elsa is officially “diagnosed” by the trolls, they tell her father to lock her up and keep her hidden. [edit: as was pointed out in the comments, and as I noticed the second time I saw the film, the trolls don't tell Elsa's parents to lock her up, they do, however, warn of scary things and tell them she needs to learn control, as well as remove all mention of magic and conceal all things related to it. It is Elsa's parents who have such an extreme and unnecessary response.] They are to hide this abnormality, and to keep her sister and the rest of the world away from her. This is ostensibly for Elsa’s own protection. They basically place her in solitary confinement, and instead of teaching her how to wield her powers, they teach her to suppress and hide it. They even hide her whole identity from her sister. And when she is unable to do what they want, unable to appear normal, they lock her up. They bind her hands (where her powers come from) with gloves – quiet hands – and they force her to conform or be locked away. This is what happens to autistic kids. We are forced to conform. We are forced to suppress our autistic traits, to hide them from everyone. And when we fail, as we often do, because autism is an integral part of who we are, we are hidden from view instead. There isn’t any help for us to learn how to work with what we are given. We don’t have the opportunity to learn and grow with our powers, we are told to suppress them or there will be dire consequences.

When she is being crowned, and has to remove her gloves, you see her muster every tiny ounce of self-control she has, so that her hands will work the way “normal” people do. She is able to do it, but only briefly. Because that’s not how her body works, and there are limits to how much anyone can do to “pass” as normal, and she is finding her limits. And when she is pushed past her limit later at the party, she has a meltdown, and her magic spills out uncontrollably. She accidentally hurts someone she loves, terrifies everyone around, and spirals into a complete shutdown, running away from everyone in the process. I’m sure I am not the only one who has had this experience…

And heck, she even has a song that I related to:

The wind is howling like this swirling storm inside
Couldn’t keep it in; Heaven knows I’ve tried

Don’t let them in, don’t let them see
Be the good girl you always have to be
Conceal, don’t feel, don’t let them know
Well now they know

But there is a happy ending, of course. In the end, Elsa learns that her powers aren’t so bad. She learns to control them, to work with what she has. While it isn’t easy, she learns how to be her true self, and when others see that her true self, powers and all. Others see that her powers are just a part of the person who she is, and they love her for all of her, strange power and all. Only when she finally stops hiding herself, does Elsa truly gain acceptance. She isn’t normal, but she is a person, a wonderful person, with some very unique things to bring to the table. And when that happens, everyone is happy.

Now don’t get me wrong. I’m not saying that Elsa is an autistic character. I’m not saying that autism is a superpower like the magic in the animated film (obviously it is totally different!) All I’m saying is that Elsa’s childhood and coming of age experience that is portrayed in the film has a number of parallels to my own life, especially based around my being autistic. And I wanted to recognize that, because it made me really really happy. I almost never relate to movie characters that way, but I did, and it made me smile.

So overall, I have to say well done, Disney, very well done. Of course there were some issues with the film, but nothing is perfect. Sure there were some missed opportunities (yet another white, blonde haired, blue eyed princess). Sure, there were some ridiculous over-sexualization moments that were a little unnecessary (Ice-Queen transformation, anyone?). And sure, they mangled the original story to the point of near unrecognizability, with some pretty weird plot holes, but what Disney movie doesn’t? If we can’t suspend our disbelief and just enjoy a fun, animated, obviously fiction story, then that’s another problem. I think this is going on my list of awesome movies I want to own that make me smile and feel good.

Elsa’s main song, “Let It Go” is here:

Older Posts »

Categories

Follow

Get every new post delivered to your Inbox.

Join 2,128 other followers